What should be paid attention to in the daily care of patients with amyotrophic lateral sclerosis (ALS)?
My mother has developed amyotrophic lateral sclerosis (ALS), and her condition has now progressed to muscle atrophy. She requires someone to take care of her, so I would like to learn more about what needs attention in daily life for someone with ALS.
Doctor's answer (1)
Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease, requires patients to pay attention to the following points in daily life:
1. Safety precautions: Due to the gradual loss of motor ability, patients should take precautions against falls and injuries. An accessible home environment should be established, such as installing handrails and using slip-resistant flooring.
2. Dietary adjustment: The diet should mainly consist of high-protein, high-nutrition, and easily digestible foods, such as fish, eggs, and chicken. For patients experiencing difficulty chewing or swallowing, soft foods or semi-liquid meals should be provided; eating smaller meals more frequently is recommended to avoid dry, hard, or coarse foods. Additionally, attention should be paid to food hygiene to prevent complications such as aspiration pneumonia.
3. Rehabilitation training: Engage in appropriate physical activity and physiotherapy, such as walking, balance training, and muscle strengthening exercises, to delay muscle atrophy and maintain joint flexibility. However, attention should be paid to the intensity and duration of exercise to avoid excessive fatigue.
4. Daily care: Maintain body hygiene and regularly change positions to prevent pressure ulcers and thrombosis. At the same time, monitor the patient's respiratory function, and use a ventilator for respiratory support when necessary.
