Can someone with neurofibromatosis have children?

Aug 20, 2025 Source: Cainiu Health
Dr. Wang Lei
Introduction
Whether patients with neurofibromatosis can have children depends on the specific circumstances. Patients with stable conditions and no significant genetic risks can generally have children; however, if the condition is complex or there is a clear genetic predisposition, careful evaluation is necessary before making a decision. It is recommended to seek timely medical advice and undergo preconception counseling under a doctor's guidance. Patients planning for pregnancy should adjust their lifestyle and health status in advance as part of routine care.

Generally, whether patients with neurofibromas can have children needs to be determined based on individual circumstances. Patients whose conditions are stable and without significant genetic risks can usually have children. However, if the condition is complex or has a clear genetic tendency, careful evaluation is necessary before making a decision. It is recommended to seek timely medical advice and plan for pregnancy under a doctor's guidance. Detailed analysis is as follows:

If the patient has solitary neurofibroma, and the tumor has been surgically removed without recurrence over a prolonged period, with no other complications and no family history of neurofibroma, the patient can generally have children after medical evaluation. A comprehensive physical examination should be conducted before conception to ensure that the body condition is suitable for pregnancy.

If the patient suffers from hereditary neurofibromatosis or the condition is not effectively controlled—for example, the tumor continues to grow, involves the reproductive system, or is accompanied by complications such as epilepsy—then caution is required. Such conditions may increase pregnancy-related risks and the disease could be passed on to offspring. Genetic testing and genetic counseling should be conducted under a doctor's guidance to assess the risks of pregnancy before deciding on childbearing.

In daily care, patients with pregnancy plans should adjust their lifestyle in advance, maintain regular作息 (作息 translates as作息 habits or routines), avoid staying up late and excessive fatigue.

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