Can neurofibromatosis be cured?

Currently, neurofibromatosis generally cannot be completely cured, but through standardized treatment and management, symptoms can be effectively controlled, complications reduced, and patients' normal lives maintained. A detailed explanation is as follows:

Neurofibromatosis is a genetic disorder associated with gene mutations. Tumors may affect multiple areas such as nerves and skin, and they may recur repeatedly. Current medical approaches struggle to completely eliminate the causative genes or cure the disease. However, corresponding treatments can be applied for different symptoms—for example, surgery can be performed if tumors affect function or cause pain, and antiepileptic drugs can be used to control seizures when they occur.

The core of treatment lies in long-term management. Patients need regular follow-up visits to monitor tumor changes and overall health, allowing timely adjustments to treatment plans. Additionally, avoiding pressure on tumor sites, maintaining regular sleep patterns, and eating a balanced diet can reduce the risk of tumor rupture or infection and alleviate physical discomfort.

In daily life, patients can better cooperate with treatment by learning about the disease and maintaining communication with healthcare providers. Family members can also offer psychological support to help patients maintain a positive attitude and jointly manage the challenges posed by the disease.